Each month, one family with a medically complex baby or child will be selected to receive a portion of the profits from Legendairy Milk as part of the Legendairy Littles program.
The month of May we have selected to focus on congenital heart defects. According to the March of Dimes, approximately 40,000 babies in the United States are born with a heart defect each year. Heart defects are not all the same. A heart defect can affect a baby’s heart in the wall between the two sides of the heart, the valves, or the arteries and veins. It can cause blood to slow down, move in a wrong direction or wrong place, or even be blocked completely. Treatment and care for a newborn with a heart defect will be different for each family.
At 20 weeks gestation, Vivian was diagnosed with Hypoplastic Left Heart Syndrome. In this condition, the left side of her heart did not form properly causing her to receive inadequate blood flow to her body. Vivian is now ten months old and remains in the Intensive Care Unit (ICU). Vivian has never been able to leave the safety of the hospital due to her heart defect. Since birth, Vivian has also been diagnosed with two additional heart defects. The first is Total Anomalous Pulmonary Venous Return where she has an extra vein going out from her heart and draining into her lungs. The second is Atrial Septal Defect where she has a hole in wall between her two atriums. In addition to her heart defects, Vivian has also been diagnosed with Chronic Lung Disease and Severe Pulmonary Hypertension. Vivian’s family, including her twin sister Emma, trusts in God for Vivian’s healing.
During the month of May, a portion of Legendairy Milk’s profits will be donated to Vivian’s family to assist in the expenses associated with visiting Vivian in the ICU and providing her care. If you would like to nominate your family for the Legendairy Littles program, please email us at firstname.lastname@example.org.