Each month, we donate a portion of our sales to a child with medical needs through the Legendairy Littles program.
At 30 weeks, it was discovered that Atlas had a mass on his back. After a lot of evaluation, it was determined that he had Spina Bifida, Cleft lip, Clubfoot, and VSD between the bottom chambers of his heart. Atlas was born full term in October 2020 at 5 pounds, 15 ounces. After birth, he was flown to a hospital 70 miles from home. After birth, Atlas gained a few more diagnoses – two types of Spina Bifida (external cervical meningocele, internal thoracic meningocele), split spinal cord malformation type 2, diaphragmatic hernia, neuro enteric cyst, double aortic arch, VSD, club foot, and cleft lip. By the time he was two months old, Atlas had multiple surgeries. The first was to remove his external meningocele and untether his spinal cord. The second was to remove the enteric cyst, put in a nissen wrap, and provide him with a gtube for feeding. This surgery ended up being more than twice the anticipated time, he went into respiratory distress after, and a blood clot was discovered when he was moved back to the NICU. Atlas is quite the special guy, children are typically born with one or two of the abnormalities, but not all of them.
During the 127 days that Atlas was in the NICU, his parents did not qualify for housing due to COVID, so they would have to travel regularly to see him. Atlas continues to amaze his family with his strength and is a true miracle baby. He is preparing for a heart surgery soon for his double aortic arch. During the month of April, a portion of all sales will be donated to Atlas’ family to help with his ongoing medical needs. If you would like to follow Atlas’ journey, you can do so on their Instagramashley_nicole847