Each month we donate a portion of our profits to a child with medical needs through the Legendairy Littles program. The month of June we're focused on a Butterfly child named Brady.
Brady has a rare genetic skin disorder called Epidermolysis Bullosa (EB). Children with EB are often referred to as “butterfly children” because their skin is as fragile as butterfly’s wings. People with EB are missing an important protein that holds their skin layers together which results in blistering, tearing, and skin that can shear off. This condition affects the entire body, not just the skin, leading to blisters on the eyes, mouth, and internal organs. There is currently no treatment for EB, only aggressive wound care, nutrition, and infection control. Brady must be bandaged daily so that he can participate in everyday activities. This wound care can steal upwards of three hours each time and costs thousands of dollars each month, which insurance will not cover.
Brady is an amazing two-year-old who has the most infectious smile. Brady loves watermelon, playing with his older brother, airplanes, and playing ball. It is with hope and faith of a treatment one day that Brady’s family works to raise attention for EB and help raise money for further research. If you would like to continue to follow Brady’s story you can visit him on Facebook: Believe in Brady, or his website is believeinbrady.com. Legendairy Little’s donation will help Brady’s family continue to purchase the wound care that Brady needs. If you would like to give directly to Brady’s family, here is their YouCaring site: https://www.youcaring.com/bradyattar-712770?utm_source=mandrill&utm_medium=email&utm_content=link&utm_campaign=update-posted