Each month we donate a portion of our proceeds to a child with medical needs through the Legendairy Littles program. Aria is a three-month old feisty Little who enjoys keeping her level 4 NICU doctors on their toes.
Aria was born beautifully unique in June. Aria was born with her 3rd and 9th chromosomes translated. The 9th Chromosome helps to control cell growth and division, including preventing the growth in uncontrolled ways. The 3rd Chromosome contains approximately 1,000 genes that provide instructions for the production of proteins. Aria was also born with Double Outlet Right Ventricle Syndrome (DORV) and two holes in her heart. DORV is a rare heart defect does require surgery to close the additional hole in the heart and connect part that were not connected at birth. In addition to being a heart warrior, Aria also has hypoglycemia, cysts in her liver, craniosynostosis, and Pierre Robin Sequence.
Like all journeys in the NICU, Aria has experienced her share of bumps along the way. Around one month old she mysteriously became jaundiced. The most common symptom of this is when the skin and whites of the eyes become yellow. Jaundice is often caused by an immature liver, infection, or medications. Aria’s doctors are still figuring out why her jaundice popped up and monitoring it to see if treatment will be needed.
The Level 4 NICU is located three hours from Aria’s home. Her parents spent the first month juggling time between Aria and her five-year-old sister, Ava, until Dad went back to work. Aria has spent a lot of time sedated to fight agitation of her ventilator. This does not stop her from keeping everyone from paying attention to her. She loves to get dressed up in matching blankets and headbands, and loves to be read to from her Mom, Dad, sister, and grandparents.
(Trigger Warning)
We are saddened to announce, Aria has since passed away. She was an absolute miracle and was loved by everyone who met her.
During the month of September, a portion of our proceeds will be donated to Aria’s family. If you would like to donate to their GoFundMe, visit https://tinyurl.com/fhs9ms34